David Freis results 1
· Newest (Page 1/1, per page 25)
Author: David Freis ×Clear All Filters
Search Results
Rare disease genomics and justice: overview of a workshop at the Fondation Brocher, 22–24 January 2025NARA Subscribed
Genomics is transforming health care but its implementation raises challenges. This paper reports a 2025 workshop on justice in the implementation of genomics for rare disorders. The workshop goals were to develop a consensus understanding of the problems faced by rare disease patients and families where justice is at stake, to achieve a shared perspective on support for rare disease patients, and to consider the implications...
Previous1Next