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NARA Subscribed3
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Springer Nature3
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The Cerebellum3
Publication Year
20241
20232
Robyn Labrum results 3 · Newest (Page 1/1, per page 25)
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Factors Influencing Health-Related Quality of Life of Patients with Spinocerebellar AtaxiaNARA Subscribed
The Cerebellum · 2024 · Vol. 23 · Issue 4 · Springer
Niklas Weber; Maresa Buchholz; Anika Rädke; Jennifer Faber; Tanja Schmitz-Hübsch; Heike Jacobi; Thomas Klockgether; Wolfgang Hoffmann; Bernhard Michalowsky; Sophie Tezenas du Montcel; Peter Bauer; Paola Giunti; Arron Cook; Robyn Labrum; Michael H. Parkinson; Alexandra Durr; Alexis Brice; Perrine Charles; Cecilia Marelli; Caterina Mariotti; Lorenzo Nanetti; Marta Panzeri; Maria Rakowicz; Anna Sulek; Anna Sobanska; Ludger Schöls; Holger Hengel; Laszlo Baliko; Bela Melegh; Alessandro Filla; Antonella Antenora; Jon Infante; José Berciano; Bart P. van de Warrenburg; Dagmar Timmann; Sandra Szymanski; Sylvia Boesch; Jun-Suk Kang; Massimo Pandolfo; Jörg B. Schulz; Sonia Molho; Alhassane Diallo; Jeanette Hübener-Schmid; Magda Santana; Marcus Grobe-Einsler; Berkan Koyak; Mafalda Raposo; Manuela Lima; Hector Garcia-Moreno; Paola Giunti; Luís Pereira de Almeida; Bart van de Warrenburg; Judith van Gaalen; Dagmar Timmann; Andreas Thieme; Kathrin Reetz; Imis Dogan; Carlo Wilke; Ludger Schöls; Olaf Riess; Matthis Synofzik; Jeroen de Vries; Jon Infante; Oz Gulin; James Joers; Chiadikaobi Onyike; Michal Povazan; Eva-Maria Ratai; Jeremy Schmahmann
Background Little is known about the progression of health-related quality of life (HRQoL) and predicting factors in spinocerebellar ataxia (SCA). Such knowledge is crucial to identify modifiable factors promoting everyday life with SCA and attenuating HRQoL decline. Objectives This study is to assess HRQoL progression and identify factors affecting SCA patients’ HRQoL. Methods Longitudinal data (three-year follow-up) of 310 S...
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Health-Related Quality of Life in Patients with Spinocerebellar Ataxia: a Validation Study of the EQ-5D-3LNARA Subscribed
The Cerebellum · 2023 · Vol. 23 · Issue 3 · Springer
Maresa Buchholz; Niklas Weber; Anika Rädke; Jennifer Faber; Tanja Schmitz-Hübsch; Heike Jacobi; Feng Xie; Thomas Klockgether; Bernhard Michalowsky; Sophie Tezenas du Montcel; Peter Bauer; Paola Giunti; Arron Cook; Robyn Labrum; Michael H. Parkinson; Alexandra Durr; Alexis Brice; Perrine Charles; Cecilia Marelli; Caterina Mariotti; Lorenzo Nanetti; Marta Panzeri; Maria Rakowicz; Anna Sulek; Anna Sobanska; Ludger Schöls; Holger Hengel; Laszlo Baliko; Bela Melegh; Alessandro Filla; Antonella Antenora; Jon Infante; José Berciano; Bart P. van de Warrenburg; Dagmar Timmann; Sandra Szymanski; Sylvia Boesch; Jun-Suk Kang; Massimo Pandolfo; Jörg B. Schulz; Sonia Molho; Alhassane Diallo; Jeanette Hübener-Schmid; Magda Santana; Marcus Grobe-Einsler; Berkan Koyak; Mafalda Raposo; Manuela Lima; Hector Garcia-Moreno; Paola Giunti; Luís Pereira de Almeida; Bart van de Warrenburg; Judith van Gaalen; Dagmar Timmann; Andreas Thieme; Kathrin Reetz; Imis Dogan; Carlo Wilke; Ludger Schöls; Olaf Riess; Matthis Synofzik; Jeroen de Vries; Jon Infante; Oz Gulin; James Joers; Chiadikaobi Onyike; Michal Povazan; Eva-Maria Ratai; Jeremy Schmahmann
Although health-related quality of life (HRQoL) has developed into a crucial outcome parameter in clinical research, evidence of the EQ-5D-3L validation performance is lacking in patients with spinocerebellar ataxia (SCA) types 1, 2, 3, and 6. The objective of this study is to assess the acceptability, validity, reliability, and responsiveness of the EQ-5D-3L. For n = 842 predominantly European SCA patients of two longitudinal...
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SCAview: an Intuitive Visual Approach to the Integrative Analysis of Clinical Data in Spinocerebellar AtaxiasNARA Subscribed
The Cerebellum · 2023 · Vol. 23 · Issue 3 · Springer
Mischa Uebachs; Philipp Wegner; Sebastian Schaaf; Simon Kugai; Heike Jacobi; Sheng-Han Kuo; Tetsuo Ashizawa; Juliane Fluck; Sophie Tezenas du Montcel; Peter Bauer; Paola Giunti; Arron Cook; Robyn Labrum; Michael H. Parkinson; Alexandra Durr; Alexis Brice; Perrine Charles; Cecilia Marelli; Caterina Mariotti; Lorenzo Nanetti; Marta Panzeri; Maria Rakowicz; Anna Sulek; Anna Sobanska; Tanja Schmitz-Hübsch; Ludger Schöls; Holger Hengel; Laszlo Baliko; Bela Melegh; Alessandro Filla; Antonella Antenora; Jon Infante; José Berciano; Bart P. van de Warrenburg; Dagmar Timmann; Sandra Szymanski; Sylvia Boesch; Jun-Suk Kang; Massimo Pandolfo; Jörg B. Schulz; Sonia Molho; Alhassane Diallo; Marcus Grobe-Einsler; Demet Önder; Mafalda Raposo; João Vasconcelos; Manuela Lima; Luís Pereira de Almeida; Patrick Silva; Inês Cunha; Paola Giunti; Hector Garcia-Moreno; Katarina Manso; Matthis Synofzik; Holger Hengel; Andreas Traschütz; Bart van de Warrenburg; Judith van Gaalen; Tessa Perbolt; Khalaf Bushara; Diane Hutter; Jon Infante; Leire Manrique; Andreas Thieme; Friedrich Erdlenbruch; Chiadi Onyike; Ann Fishman; Kathrin Reetz; Imis Dogan; Eva Ratai; Jeremy Schmahmann; Magda Santana; Jeannette Hübener-Schmid; Sophie Tezenas du Montcel; Sandro Romanzetti; Florian Harmuth; Caterina Mariotti; Lorenzo Nanetti; Maria Rakowicz; Grzegorz Makowicz; Alexandra Durr; Alessandro Filla; Alessandro Roca; Ludger Schöls; Holger Hengel; Jon Infante; Jun-Suk Kang; Carlo Casalo; Marcella Masciullo; Laszlo Baliko; Bela Melegh; Wolfgang Nachbauer; Katrin Bürk-Gergs; Jörg B. Schulz; Olaf Riess; Kathrin Reetz; Karla P. Figueroa; Susan L. Perlman; Christopher M. Gomez; George R. Wilmot; Jeremy D. Schmahmann; Sarah H. Ying; Theresa A. Zesiewicz; Henry L. Paulson; Vikram G. Shakkottai; Khalaf Bushara; Michael D. Geschwind; Guangbin Xia; Stefan M. Pulst; Sub H. Subramony; Marcus Grobe-Einsler; Demet Önder; Berkan Koyak; Kathrin Reetz; Thomas Klockgether; Jennifer Faber
With SCAview, we present a prompt and comprehensive tool that enables scientists to browse large datasets of the most common spinocerebellar ataxias intuitively and without technical effort. Basic concept is a visualization of data, with a graphical handling and filtering to select and define subgroups and their comparison. Several plot types to visualize all data points resulting from the selected attributes are provided. The...
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